Tell me something I don't know
I'm still fighting my infection. That's why I haven't made very spicy postS…
2023-12-07 22:03:09 +0000 UTC View PostWe are supposed to do this every month, but with the chaos that ensued in November it was put off, and I had been noticing more of a struggle with my breathing and coughing. Thankfully today my caregiver was able to change it, it seems and is such an important routine, it only takes seconds to do, but within minutes if my tracheostomy hole is left open, it can close. So it's vital for me to have caregivers around me who are trained in this, even though the only one who knows how to change it ...
2023-11-28 04:19:22 +0000 UTC View Post
Ain't easy being paralyzed or caregiving for someone who is paralyzed when you live in a house with a flight of stairs like this! Usually, there's a guy around* not just a random guy, one of our friends lol* to help with this, but sometimes we resort to girl power. My live in caregiver is down for anything and that's why she's the best! However, we are trying to raise money for a stair lift, now that my Medicaid is back on. I'll try to change the theme of my go fund me to clarify this, but if...
2023-11-18 21:11:55 +0000 UTC View PostFound out how to use YouTube instead of Vimeo to post to links that are unlisted so that they are not public to everyone on YouTube… this is a huge relief because video started charging me ridiculous amounts to simply make videos which is really not worth it in the long run. This is why I stopped posting for a while because I've been trying to figure it out. Here's one of my friends helping my live in caregiver to give me a massage
2023-11-18 20:48:37 +0000 UTC View Post
I'll be back to my regular rescheduled content… but I'm pretty exhausted from all of this Medicaid termination stress. I'll try to make a video tomorrow about it but for now… more front and center from red rocks
2023-11-08 05:31:28 +0000 UTC View Post
My caregiver, her ex, me and my boyfriend went to red rocks… I treated everyone because I was so stoked to finally see GRYFFIN Front and CENTER! Honestly, compared to most red rocks tickets these were super affordable and we all know I had to get my BF back for buying me all those flowers and chocolate😉 good vibes all around as we went up the ramp leading to the amphitheater. As a power wheelchair user, I really recommend not using the shuttle on the way up, but if I was a manual wheelch...
2023-11-03 03:39:47 +0000 UTC View Post
My boyfriend feeding me tequila before the show so I wouldn't freeze😂 his mischievous expression says it all. I'm only posting my relationship here on this platform because I'm low-key not excited about the backlash I'm probably going to get on social media about our age difference. But I have to post about it somewhere ha ha.
2023-11-02 20:59:00 +0000 UTC View Post
What do you think of my little black dress ?😊
2023-11-02 20:44:04 +0000 UTC View Post
I had an amazing time at red rocks. Was it too cold for pasties? Yes. Was I the only girl in the whole place wearing them? Most likely yes. Nevertheless, we shine😊💍
2023-10-27 03:56:23 +0000 UTC View Post
Feeling super overwhelmed and emotional about the current World events😞 there's not a lot I can do about it though, so I keep having breakdowns and taking pictures
2023-10-19 19:41:52 +0000 UTC View Post
HANACURE doesn't mess around ha ha. I was nervous posting this because I really don't like Recording myself without make up on, but I had to show the transformation.
2023-10-18 22:41:56 +0000 UTC View Post
I shit myself before and after this photoshoot.im struggling so much with stomach pains and fatigue and fear about eating because nothing is staying in my system.it’s super inconvenient inconvenient and uncomfortable to always be afraid to go anywhere or do anything because my body is so unpredictable
2023-10-08 20:55:57 +0000 UTC View Post
It's OK to feel very bad, because it means at some point you will feel very very good. At least, that's what keeps me going😉
2023-10-08 19:20:01 +0000 UTC View Post