I disappeared for some time, because after the immunoglobulin infusions I felt really very bad, we called an ambulance three times and a nurse came twice. It felt like all my symptoms had gotten worse at once, I can’t even tell you how bad I felt. Yesterday was the first day without pain, today I even went for a walk in the fresh air. Every day we continue to talk with doctors, each with their own version and their own method of treatment. New tests have shown that I have autoimmune thyroiditis, now a bunch of autoimmune complications are starting to appear, and we still continue to look for the cause. One doctor says it’s all because of Bareliosis, treat it, the second doctor says it’s all because of Epstein Barr, treat it. The third doctor says it’s something else altogether, go get tested again.
I am currently on a high dose of steroids and many other medications. And I hope some of this helps.
And I’m very afraid to make more ciliates with immunoglobulins, if I just felt so bad after them.
Mentally, I still feel bad, I just don’t have the strength left for anything. I dream of leaving here somewhere in the mountains or nature. I feel like my vital energy has dropped to complete 0 because of doctors, tests and pills. And I don't know how to break out of this circle.
That's it.
Jeff Van Niel
2024-02-22 21:24:44 +0000 UTCBarry Andrew
2024-02-22 12:49:51 +0000 UTCMark Anthony
2024-02-22 12:43:03 +0000 UTC