XaiJu
clefchan
clefchan

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Magical World photoshoot and health

While waiting for this week end random draw, you'll find my latest pictures below ^^


Concerning my health : a couple days ago I saw the lung specialist, who, like the previous specialist , doesn't know why my throat is clicking, why I have trouble swallowing , why I feel like someone is strangulating me,why I have trouble breathing and why it's not everyday as strong as other days.... she gave me a blood test for commun allergies . ( yes "commun", means I already did them and I already know I'm allergic to pollens and some other stuff and... it's not the cause .... sigh) I guess the next step is to wait for January and  having the esophagus biopsy . I didn't want to have one but I see no other choice to progress on this enigma .

I'm still struggling with my stomach , which means my diet is really boring but ...I'm used to it and as long as I stick strictly do it, the pain is manageable . Couldn't even eat a slice of  gingerbread without feeling super sick on sunday. Luckily there are other stuff than food to enjoy Christmas vibes.

I also did more walking lately, which is a really good sign even though when I'm back home I can't do anything else for a couple hours after that ^^ ! However I guess I went past my limits the past couple days and now I'm having a  backlash because my hips are burning like hell and  I have  strengths left only for basic stuff.  I wanted to make a Christmas photoshoot this week end but I'm not sure I'll be able to. We'll see

My mind is so not ready to accept I have the physical resistance of a sedentary 80 years old . I always want to do more!

Just a reminder, in 2017 I was walking around 500 to 2000 steps a day on the good days and less than  200 on the bad ones :) It shows wanting to do more is a good motivation, however it is also a deception when the body doesn't follow your expectations.

But as long as it keeps improving it's okay !



Now the pics ^^:












See you soon I hope !

++Clef



Magical World photoshoot and health

Comments

fast reply because I'm not inspired^^ ! thanks Chris for always cheering me up ! You really seem like a nice person. I believe in the universe, I love life, if I'm no facing a chronic disease it's for a reason. By the way how many years ago did you have your surgery ? Ho to answer your question, I already did a Celiac test in the past and it's fine, I'm not even intolerant to gluten ^^Like I said, basic tests are just useless unless it's the first time you have them. Now well...let's go for the biopsy then, I can't wait to the day i'm able to swallow my saliva and food without struggling and searching for some air ^^ And by the way : I always told myself I would live 120 years ( minimum) and I'm still decided to reach that goal !^^ so now I just need a way to live until there but in good shape ^^

Merci Frank .Comme je disais a Angel plus haut, c'est ce qui me permets de continuer. De repousser la maladie plus loin. Sans le cosplay, sans vous tous derrière qui me soutenez, je ne sais pas si j'aurais autant progressé au niveau santé. Vous me donnez un but, Patreon me donne un but, car je veux vous montrer que votre aide n'est pas là pas pour rien et du coup ça m'oblige (par ce que je le veux) à ne pas baisser les bras et à faire plus . Je rêve du jour ou je n'ai plus besoin de 3 jours pour me remettre d'un photoshoot ni 3 pour le préparer mais au moins, je le fais et ça c'est grâce à vous! Alors merci ! <3

Vraiment, je ne sais pas comment tu fais pour paraitre si angélique sur les photos quand on connait ton état de santé ! Chapeau bas mam'zelle ! Continue à te battre comme tu le fais déjà, et tu finiras par te remettre de tous ces maux, j'en suis sûr !!! Biz Lolo et bon week-end !

Thank you. You know, this is what keeps me fighting for my life back. Without all this I don't know if I would have made so much progress. This is why I'll continue to make photoshoots despite the pain and fatigue it produce. And because I want you to see the money you give me is worth something, I have to do things to thank you. And then each time I push myself to do a photoshoot for this platform it gives me a goal to achieve . I'm so grateful for cosplay and for you people, because you are the fuel that permits me to fight this illness and someday win !

The most important part of this looong comment lies at the end so read on! But since I can't help myself, we'll start...here. :-) I hate to bring this up because it is the fad disease of the century but...I assume the common allergy tests include a test for Celiac Disease? This can cause GI damage and lung complications (a variety of COPDs). That said, a biopsy should give you an answer on amyloidosis or sarcoidosis (two of the seemingly lead candidates). It could also, I believe, check small cell lung cancer off the list (hopefully you've already had an x-ray, CT, and MRI of your lungs kor at least one of those)). So the biopsy could give you an answer. The best advice I could ever give anyone undergoing any procedure is: don't be afraid. Easier said than done, I know. But it's amazing how powerful your brain is. As a two part example, I recall being relatively calm going into my brain surgery. Not in the weeks leading up. I was a mess. But when the actual event came, I was cracking jokes with the surgeon because suddenly all the anticipatory stress was gone. The surgery needed to be done and there was nothing I could do to change that, so why worry? It was in the hands of the universe now (or God or the one consciousness if you'd prefer) and I knew everything would go exactly as the universe intended. It may sound silly but I found comfort in that as I believe the universe knows what it's doing and what is best for me (certainly better than I do!). It knows the path I must walk and the reasons why better than I ever could. On the other side, they switched my meds a year or two ago to Lamictal which, among other things, can cause a life threatening rash in extremely rare cases. I was terrified of this thought and couldn't take a single pill without feeling the proverbial axe hanging over my head. And that wasn't the only time I worried about it. And wouldn't you know it? One week later the rash made its grand entrance! This is anecdotal evidence at best but the science side of it is that it is believed that the body will determine an allergy based on how it subconsciously identifies a substance (food or invader). That's why they say to expose kids to peanuts early. First encounter with peanuts in the stomach? This is food! First encounter with peanuts through inhaling peanut dust through the lungs? Foreign invader! Get it out! Every time I took the Lamictal my body's response was always: stress, danger! And thus the allergy. So, long story short, everything will be ok. It can't be otherwise in the universe as we all walk the paths we're meant to (and perhaps even the one we choose though that is a metaphysical debate for another day). Long story longer, if reassurance of a more scientific bent would be more helpful, there is a concept proposed as a result of quantum physics and, more specifically, string theory called quantum immortality. Boiled down it can be summed up as: each of us will live the longest life possible to us. Essentially, consciousness plays a role in determining reality by tuning into a specific vibrational frequency (string) and thereby locking onto one of the countless probability-wave parallel universes that diverge at each moment in time. So the direction of consciousness (the choice of a path, whether consciously or subconsciously, excuse the pun) allows you to jump between probable universes. According to the theory, this means that any time there is serious danger in one universe (brain surgery, seizure while driving, etc.) your consciousness will automatically choose the potential universe that continues while the other universe abruptly ends. So from our temporal perspective, life goes on eternally. As an example: I had a grand mal seizure where I blacked out. I woke up in an ambulance. I may still be in a coma for all I know as I have no way to verify the actual existence of anything independent of my ability to perceive them (this could apply equally well for my brain surgery). Say I go on to live until I'm 80, wildly outliving the expectation. I then die...and wake up in a hospital bed at age 28 again to discover that I had actually been in a brief coma and this entire life was a "dream". I go on with that life...and on and on. That is just one possible iteration of how this could practically work. In fact, it would explain the purpose of dreaming and sleep: to maintain the illusion of temporal limitation... It also, curiously, is a scientific explanation for the religious belief in reincarnation. I hope you can take some comfort from my meandering thoughts above. At the end of the day my message is simply: you WILL be ok and all your dreams do still lay ahead. All of them. I believe that. You should too. :-)

Despite your health issues, you are still able to persevere and create such beautiful cosplay shoots! 😻

(Don't) Call Me Angel

C'est comme ca qu'on veut te voir tous les jours, t'es trop cute. Te laisse pas aller, continue les efforts et marche, rampe si il le faut mais bouge, après la vie tu auras tout à loisir de rester coucher 10, 100, 1000 ans mais pour l'instant, vis, comme tu le fait chaque jour et baisse pas les bras, on te soutient.

It is always a delight to see you smiling, even if I know it is only momentary and you pay for it afterwards. The photos are captivating - entirely appropriate for a magical world.


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