XaiJu
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Super Sailor Moon edit nov 2019: New pictures

Hello there !

Like you've probably noticed on instagram and Facebook, seeing my friends 10 days ago gave me a pretty nice mental health boost :).

I was seriously starting to get depressed being alone all the time.
Of course, seeing them did not make the disease go away ( too bad!) but it did wonders anyway.

Even though I felt extreme pain on the saturday due to my problem in my right side , it didn't stop us enjoying our time together.  When they suggested to help me putting on a costume and taking pictures, I really wasn't sure about it. I was exhausted, and I didn't feel like it. But then I told myself : do it ! the next time you get some help may not be that soon!

My friends :

And me eating a PIZZAAAA

I warned them that I would need time to get ready, like A LOT of time  but they didn't mind.  They installed my home studio and since I have artificial lightning, not being ready during day time wasn't an issue.

Pitchoune helped with the makeup  as you can see:




I remember my friend Aurelien having to help me switching poses XD. Once I was sitting down I couldn't stand up by myself XD. We should have recorded the thing, it's was pretty awkward XD
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So let me show you some of the pictures we took. Obviously I edited them on photoshop. ( or maybe I just have magical powers?)


Yes I know, I don't have the accurate scepter , but I don't  have them all, it's a pretty expensive collection so I did with what I already possessed.


Oh and the costume (the  dress) is a  gift, I didn't even do it ! I should be ashamed but I love it too much !


Bonus pic : sexy sailor moon !





The health topic now :


Well depression has been better since the past week end, I hope it's gonna last.


Every 10 days I'm going to a therapist called an Etiopath. She is working on the functional part of my body and let's say that since I have been seeing her, I see positive changes in my right side ! Like big changes !

After each session, the pain is tremendous, but then each time after a couple of days, I notice an improvement.  Conventional medicine say they can't help but that women can.  The only problem is that Lyme disease is screwing with her work all the time:  she allows my body to function better ( my biliary tracts precisely)  , but then after a while, it starts slowing down and dysfunctioning over again.

But at least I found something helping me , even if I have to go for the years to come.

I'll also start another therapy next week which is called "neurofeedback". I hope it will help my brain cope with all the anxiety and maybe more. It's not rational anxiety you know. For example, when I'm happy or just being a bit enthusiastic, my body starts having fever and panicking, my legs shake, I'm cold sweating  and feel like i'm going to pass out. . I have all the physical symptoms of  anxiety but my mind is : well uh? what's going on ?I'm calm,  what are you doing stupid brain?


The good news : My tummy is WAY better than it was one year ago! All the treatments I went trough were not useless ! I even drank a full fresh home made carrot juice tonight, if I had done this 4 months ago, I would have ended up to the IR .

But now that my tummy is on the way of healing, why am I not taking antibiotics for lyme disease?

Well... both my doctors ( german and french) are against the long term antibiotherapy in my case and...I have to say I agree with them. I just got better from severe tummy condition due to past abusive antibiotic therapies and medications . Having to take like 6 antibiotics at the same time would ruin everything once again and probably not make me better on the Lyme subject.


I've already been taking 3 antibiotics  for months now and i'm going to stick with those for a undetermined time.
Besides the antibiotics, I have started another treatment which is called" low dose naltrexone " but we don't know if it's going to help. I'm not even able to take the full dose at the moment , it makes me way too sick.  Plants also make me sick so we have to find alternatives.

So for now, the major remaining symptoms of my disease are the daily muscles/articulations pain,  recurrent fevers,  extreme exhaustion and the irrational anxiety. I did several blood test to see how is my immune system reacting, I'll probably get the results next month .

Anyway, Tummy is almost totally  pain free and my right side will probably follow that road too !

Bonus pics, because no reason:

Good night :)


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Comments

Nothing quite like a healthy dose of distraction and fun to make things feel better! Positivity is as effective a medicine as there is. Get as much as you can! Regarding the anxiety attacks with no accompanying mental anxiety, anxiety and excitement are both neurologically similar functions. They are both sympathetic nervous system actions (which is the system that kicks off fevers and trembling/shivering on behalf of the hypothalamus). Chronic stress/anxiety (which I think it’s safe to say you have, and for good reason) can cause anticipatory hyperthermia (fever, chills, and trembling). Essentially, the body gets so used to anxiety that it begins to overreact to any sympathetic nervous system activity (such as excitement or strong positive emotions), interpreting everything as anxiety even when the thinking brain isn’t sending those messages. This is probably what you’re experiencing though there are many other possibilities that can cause this effect (such as hypoglycemia (low blood sugar), vertigo, anemia related to various vitamins, side effects of meds including anti-anxiety meds (especially benzos), etc.). The good news is that this very situation is theoretically what the low dose naltrexone will normalize (though for now it may be causing it as it tries to recalibrate your immune system). As to practical advice: when these fits do happen you should be able to ease them by triggering the parasympathetic nervous system. Some of the ways to do this: (1) Open your mouth slightly to relax your jaw and tongue (2) Touch or rub a knuckle or finger to your lips (this is why children instinctively suck their thumbs) (3) Take deep breaths (in for count of three, out for count of six) (4) Put a hand on your stomach just below your ribcage and take deep enough breaths to move your hand a half inch or so. Interestingly, the parasympathetic nervous system is responsible for regulating digestion so these issues are definitely tied together. If your autonomic nervous system issue can be resolved, it may just resolve everything else in time. The naltrexone could very well be the key. We can all hope.

Awesome pictures! Great Job all of you!

Lightning girl!!!!

Delighted things are improving, albeit slowly. so your next costume will be:

Crap. My phone won't let me correct spelling and grammar mistakes. I assure you I'm not Thor , I don't have lightning sources at home XD


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