Update on health

Hello my dear patrons.

January (and february so far)  have been tough. Lots of pain and fever.

Last time I updated, I told you about the pain increasing each month in my right flank. ( edit: at first I had  written: "left..." I always think left means " right" I don't know why ><) I went to see my french Lyme specialist and then a Gastroenterologist. The first one told me to stop the antibiotics ( but not the rest) as long as we don't find what's causing that pain,  the German specialist told me to continue the SIBO treatment ( which is now  a natural treatment) And The GI sent me for an IMR which came back with no result. My  gallbladder and pancreas look fine. ( But I already suspected it) I have further appointments for a gastroscopy and a scintigraphy during march and April ( yeah , that what they call" urgent" )

Somedays the pain is so strong I have to take morphine because nothing else work and I'm forced to stay in bed most of the time. besides, Lyme disease is still inflicting pain all over the rest of my body.

I believe they won't find anything and that the pain is just the result of lyme disease impacting my organ's functionality. (well mainstream doctors won't say it since they don't believe in Chronic Lyme disease , they'll say I'm fine and that I need to go to a therapist,  but my specialists know better)

We'll see.

Anyway, they gave me pineapple juice for the IMR XD. Next time do you think if i'm being well -behaved they'll give me chocolate treats ?

 Luckily, lately I have been able to eat a bit more diverse and I'm not being  in pain as soon as I eat some  fruit or vegetables. So the pineapple juice was ok ( despite too much sugar bleah >u<)

I have not been able to work on cosplay or drawings lately. I'm afraid I'm also losing the interest for it... I finish a costume and then what ? I'm not even able to wear it. Drawing ask me to be sitting down , which I can't do for more than  10-15 minutes at the moment . I don't like it but I'm losing the desire to do anything . I really need this pain to go away, it's starting to affect my  creativity and my will .


Then, since I'm spending most of the time in my room, I decided to set my computer screen to the wall, I found a second hand Playstation 4 and am now playing Monster Hunter World everyday ;;  I don't need to be sitting down, so it's perfect.

And guess what? Pitchoune likes Monster Hunter, she's like addicted to it !

Yeah that's her face when I'm playing XD

(no smile because pain was bloody strong that day)

I have also been taking bacteriophages again along with probiotics for my tummy. They come from Georgia ( the country), and are still  not totally legal in France despite a lot of news papers saying it's the future of medicine ( which is not really true because they were discovered around 1940 and have been used since then in eastern countries)

If we're not taking account of the pain in my liver area, my tummy has improved. Like I told you before I'm now able to eat some fruits and a bigger variety of vegetables which is good news!

I'm also trying LDN  on my left leg to see what happens ( Lot's of Lyme and  autoimmune diseases  patients take LDN , it helps reducing the pain and regulating the immune system in some cases) But since it's transdermal, I don't see any difference so far.
The vegetables in my fridge look weird :

A pic I posted on my private facebook account :
I've not been doing any sport for 1 year and a half now, I'm lying down 3/4 of the day , I'm not even able to carry a pack of water bottles... so... How can I have muscles in my arms ? I know it's not impressive at all and you'll probably laugh at them but.. my arms never looked that defined before, even when I was going to the gym XD

My etiopath says my body is reacting like no others she's known so far. Must be the reason. I'm an alien !

Joke aside, I believe my body is still healthy despite everything. Yes I have this bloody disease attacking it but I like to believe that my former life will have an impact on the issue of this fight. The fact I never drank, never smoked, that I used to do sports, never partyied hard and ate relatively healthy ( my only excess was sugar: eating chocolate all the time). I hope this will give me the tools to win over the disease on the long term.

And because Pitchoune is the star model of this account as long as I'm unable to cosplay, have one more pic :)

Remember : Enjoy life ! Don't let meaningless and sterile fights bother you, try to find the positive side in every trials life brings you. I like to believe there is is a reason behind everything that happens to us.,

Sometimes, insignificant things  are beautiful and life is full of them ( a sunny day, a friend calling or emailing you, a cute cat or dog cuddling with you, having a pizza in your plate ( some of us can't even eat pizza ;) ) a neighbor smiling to you , being able to use your 20 fingers ( yes toes included ), having your family around you etc etc. Life is full of beautiful things we forget to appreciate :)

Je vous souhaite une belle journée ( ou nuit)

Clef

xxx