XaiJu
clefchan
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Recap part 3 ( health and old bonus)

Hello m y dear readers and thank you for your patience . I'm sorry for the delay.

But the pain, oh my god the pain... It makes me so frustrated because I don't know what to do to sooth it besides all the treatments and therapies I'm already following.. I guess I'm having a pretty bad backlash after these 4-5 days of almost normal life.

All my muscles  are burning and so heavy. I tried to get good nights of sleep, and I did but it didn't change a thing. When I wake up it's like I have been ran over by a truck. Or I'm laughing and then all of a sudden I'm crying and I'm not even sad or anxious or anything,no, it's just all messed up, up there) So if this is the price to pay to have a bit of fun , I'm not ready to start over anytime soon. I will , but not before the next couple months.. I need to find out how much time my body needs to partially recover.

Imagine a time when you would do so much sport in once that you'd ache everywhere for days, you'd even struggle to lift your fingers or cough. Well that's me,  all the time, but it has been a lot worse since I came back from Paris.

It's hard. Really hard. Mentally I'm still fighting. 

I go for a long and slow walk everyday, I force myself to walk as much as possible. I don't know if I'm doing myself any favor but I have the feeling that if I don't force myself to go out , seeing the sun and move my body as much as I can, I'm gonna loose the fight and die.


Maybe I'm just harming my body even more, I don't know. But it  is what my instinct is telling me: "Go out of this building as long as you can and move your body! "

Anyway I do hope the pain will lessens to a level I'm used to.


Here is a small recap of day 3 in Paris and last day of Japan Expo.

Sandra told me she were gonna wear her Alice and that the first cosplayer she ever saw and liked as Alice was me. So she was really happy when I replied I wanted to put the costume to accompany her.

My costume is very hot in summer( really thick material) but is pretty comfortable  so I supposed I would be able to wear it... and I did. I was in a better shape than the previous day, at least at the beginning of it ^^

I had more energy so I could stay on my feet and take some pics ( just for fun because I already have plenty of pics in this costume and I don't really need more^^)

The last time I wore this costume was back in 2012, when we went on stage for a general contest and we won the first group's skit prize. I was so happy
Here are some photos of our group in 2012 :

Cheshire cat, isn't she cute?

When I could still jump and "dance"

Thoses are really great memories :) We weren't competing for the costumes, we just had so much fun making our skit that we needed to go on stage^^ I really like cosplaying with my close friends, it makes the hobby so much better.




......

Back in 2018 we took some pics ( I just have bad quality ones for the moment) 


Looking dead XD:


Look at this one : Same little guy ! I though it would be funny to redo the "same picture" ^^,,


After a couple hours I decided to go around the place and do some shopping.  Japan Expo is a gigantic event but it didn't look as gigantic to me when I was fine as it looks now .

I couldn't even complete the visit, I ran out of strength and stayed stuck in a corner until my friends found me and helped me getting back to their booth. I still had time to buy 2  cheap pikachu plushies before crashing and a pretty nice Alice figurine though ^^ 

That is all for that day. We went home exhausted but with with a big smile on our face.
Next day : Disneyland :)


I wish you all a good night ( or day !)



Recap part 3 ( health and old bonus)

Comments

Thank you for your message Chris. I know I'm experiencing a flare up but fortunately KDN is already helping since I still have some energy left to walk. Which wasn't the case a few months ago. I just didn't think I would have one (being too positive Xd) I also agree any emotions is interpreted as stress by the brain. This is why some of my worse panick attack occurred when I was extremely happy or anticipating something with joy. Now that I'm able to actually do something with my days ,I'm becoming very impatient and even more frustrated. But you are right I already did big steps considering how I was doing at this same time of the year just one year ago ( bedridden almost all the time with lots of neurological troubles along with pain and extreme exhaustion , eating only zucchinis and chicken on good days, WOW o_0 ! ) I also refuse to believe there is no way to cure conditions like CFS/fibromyalgia/lyme... and a lot of others auto immune conditions. They want you to believe you can't heal from them and have to be debilitated for the rest of your life. I want so much to be a living proof of the opposite.. I may be unrealistic , but this is a part of my motivation to get better. Anyway. It's time for me to go on a slow walk and soon I'll be able to do more interesting things :) A bientot.

Take a deep breath. The pain level should return to normal with a bit of time. What you are going through is likely an autoimmune flare up (which is common with nervous/immune system dysregulation which is what the LDN is treating). A flare up can be kicked off by any unusual physical and emotional stress. You had plenty of both during your recent adventures (from a sympathetic nervous system perspective, any strong emotion (good or bad) is interpreted as “stress”). The good news is that time should set this right (though I can’t give you any kind of timeline). More good news, the LDN should help make the recovery quicker (we can hope). As to the walking, don’t push yourself too hard but low-impact exercise (like walking) should help more than it hurts. It boosts the immune system (by raising the body temperature and getting blood flowing) and enhances the mood. Getting up and doing what you can (as much as you can) is definitely a good plan. But the best thing you can do for the pain (and the ongoing mental battle) is take a look at what you just accomplished/experienced recently. Really let it sink in. Relive it in memory if you can. Then think about where you were only a month or two ago. Yes, you may have pushed yourself a bit too hard but this was a step in the right direction, a milestone. And better things lay ahead. As you get better and continue to test your limits, your limits will be pushed ever outward. In your worst moments just remind yourself of this: better things ahead. You won’t die as long as you keep fighting. You’ve already come a long way. Don’t let a hopefully brief setback take away all the good you just experienced. Keep fighting for those better things to come.

I love you as Alice, it is what brought me to your pages initially. I would love to take your pain away from you, but can only hope it diminishes quickly. Take care, little leaf, draw comfort from knowing that the exhaustion will pass, eventually, but the memory of that big smile will stay forever.


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